As I said, I made the call at 3pm already dreading it as I dialed.
My mother answered and proceeded to launch into this long, drawn out, convoluted tale that a second cousin of mine supposedly also has Chronic Uticaria and has been living with it for 30+ years. Now I find this very odd only in the snese that when I had my initial breakout, I actually spent a few days with my cousin back in 2006 and both her and her husband seeing me in this state never offered up any information regarding her own bouts with uticaria, let alone make any snap diagnosis or advice on what to do.
What further began to annoy me (and I take full responsibility for my lack of patience), is the fact it took my mom almost 10 minutes to spit out a 15 second piece of information, with many backtracks and repetitions in the story.
The story was then followed up by the usual questions that I've answered at least 50 times before: "What are you taking? What are you eating? How many blood tests have you had? What medication are you taking? When was the last time? Will you see a hemotoligist if I set up an appointment?" My God, I feel like banging my head against the wall because I have this exact same conversation every single time and my answers are still the same and they don't waiver. I feel like I should write out a FAQ white paper and mail it to her.
As if that wasn't bad enough....my cousins husband (who has no medical training whatsoever) recommended to my mother that I stop taking antihistamines. WHAT? I have to remind my mother, yet again, that I have seen 4 seperate doctors and all 4 of them have prescribed to me the anti-histamines....and when I take them....my symptoms, while they do not disapear, are indeed lessened and makes my situation much more manageable.
This is then followed up by the often repeated knee jerk DON'T list: Don't eat tomatoes. Don't eat shellfish. Stay away from sushi. Don't drink alcohol. Don't go outside. Don't do this....don't do that....blah, blah, blah.
Mind you, the last few days I have had to explain everyone I come into contact with who sees me there question of "What's wrong?". The amount of pills I take everyday along with their various side effects makes me grumpy. Topped off with the way my wife carries on and on about it as well with her illogical conclusions really begins to push my buttons and grate on me.
Before you know it, I do indeed begin to lose it. I end up swearing in general out of frustration, which of course now sends my mother in a tizzy on the other end of the phone asking "Why do I treat her like this? Why am I swearing at her?", followed by by her infamous guilt trips. I'd like to point out that even though I did swear, it was not at my mother, it was to no one in particular....just an immature response to the ether from my built up tension.
My mother then turns the conversation into how I am ungrateful for her help and then manages to bring my dad into the picture as well. Now I am accused of not treating "them" with any respect, never picking up the phone, never returning calls (an outright fabrictaion of epic proportions), how Christianity hasn't taught me anything, and how I've changed the last few year...and not for the better.
I try an explain 'calmly' that she doesn't listen to me, that my frustration stems from the fact that every call lately is me answering the same questions over and over and over again. That no matter how manty times I tell her I've seen a doctor, or taken bllod tests, allergy tests, told her the medications I am currently taking....I have to start and explain from scratch each and every time. Couple that with actually living with the discomfort and playing Q&A with all my neighbors and coworkers...yes....I get a little agitated.
She eventually hung up on me in tears.
Of course I am saddened once again our conversations end the way they do. I do not want her to cry, nor did I mean to hurt her feelings. I also know and appreciate her concern and willingness to help. I am also sorry I swore out loud. However, I am not sorry that I said "You don't listen.", nor am I apologetic for pointing out the continued contradiction of some of her advice when it comes to what the doctors and research tells me as compared to my second cousins husband.
I sit down and try to collect my thoughts, replaying the whole thing in my head and asking God to point out where I went wrong, and how to manage it in the future so I don't get sucked into that dark and bitter place, especially when it comes to my mom.
Then of course my wife has to chime in now and give me her $.02 on what she just witnessed. I'm too tired to comment back, so I just let her talk, hearing only half of it, ignoring the ihe other half.
I'd really like a drink right now and to be alone for a bit.
As the afternoon turns into evening, my wife decides to hang out with the neighbors out front. As usual it's all about sitting in a circle with open wine bottles, cigarette after cigarette, and idle chatter. I only go out for a few minutes to say "Hi", but quite frankly would rather be inside.
Ten minutes later I tell my wife I'm going back in the house, which is met with "Why?" in front of everyone. I don't want to voice anything in front of my neighbors and really say "Because this is boring and I have better things to do than to watch you all smoke and drink and talk about who knows what and gossip", so I simply say "I don't feel all that well".
I end up reading a book for a while and watching a very interesting documentary on NASA before I go to bed. I peek outside and I see my wife with the women neighbors...still sitting in the same circle they have been for hours...smoking and drinking....and I catch myself shaking my head in mild disgust. I also wonder why my wife can't make time for church knowing how important it is to me, but can spend hours upon hours doing nothing of grand importance with the neighbors.
I go to bed and pray that sleep noty only comes quickly so that this day will end, but ask God for foregiveness for my judgemental thoughts and allowing my mind to go to dark places today...
To be continued....
Showing posts with label Chronic Uticaria. Show all posts
Showing posts with label Chronic Uticaria. Show all posts
July 01, 2008
A Series of Events (Part II) - Saturday morning
My wife wasn't too happy that she had to work Saturday. She is a salaried employee who doesn't really have the luxury of saying "No" or taking a break when she would like to. I do have some empathy for her as I know her boss and the company takes advanatge of her.
Her problem, and I tried to warn her multiple times of this a few years back, is that she has a problem saying "No." to her company when they ask her to do favors. Funny, she doesn't have a problem saying "No." to me when I think about it. She's sorta backed herself into a corner these days in the fact that her boss doesn't even ask for 'favors' anylonger. My wife has said "Yes." so many times in the past, they now just expect her to work when everyone else takes time off for personal reasons. If there is one thing outside our marital and financial issues that irks me is that I really do feel they have her over a barrel and truly take advanatge of the situation. The last few months her work has been piling up and on, and her 40 hour a week job has easily been closer to 60 as of late. The problem is, they really do not compensate her for it...not even 'comp' time. I know the state of the economy we're in, and with some of our bills, we can't afford (for very long) to have one of us lose our job right now. She just got her merit raise and it was a whole 3%. I suppose 3% is better than nothing (my company didn't give any raises so far this year), but 3% of nothing really doesn't equate to much anyhow. It clearly doesn't even come close to the amount of hours she's been working, and for that I do feel bad for her. On the flip side.....the more she works though, I figure the less likely she's apt to get in trouble and also stays away from what I consider some bad outside influences.
Anyway, she got up early on Saturday morning to go to work and since I've been having trouble sleeping anyways, I decided to get up as well. It was early enough where I figured I could do some chores before I went to my mens bible study at 8:30am. At about 7:15 I decided to take a few minutes break and play a video game for a few minutes.
That's the danger of addictive games....my planned 30 minute break started to creep up on 45 minutes and I kept telling myself "5 more minutes" and I gotta go. Well, I must have said that to myself at least 3 times because the next time I looked at the clock it was now 8:25 and I wasn't even dressed. Thankfully, my church os only 2 minutes away, so I figure they never start on time anyway, so if I'm 5 minutes late, I really haven't missed anything.
Well, wouldn't you know...I stretched my 5 extra minutes into an additional 10. When I finally turned off my computer and got dressed it was now 8:45. I told myself I should start a load of laundry (it should be done by the time I get back)....after I take my medication. I loaded the machine with my work clothes, took my meds and then looked at the clock. 9:00am. Great. Now I'm 30 minutes late.
I look at my dog and realize he hadn't been walked in two days due to the heat and I felt a bit guilty. I made the decision to walk my dog and forego bible study. By the time I got there at this rate it'd be 1/2 over anyway.
Ugh. Inside I felt ashamed. I had all intentions of going the previous few days and thought I was looking forward to attending. But deep down inside, I must have made some internal excuses as to how to avoid it....and then justify it within my mind. My last self-justification was that my body was still recovering from my latest Uticaria outbreak, with my hives about 90% under control. Why chance the heat if I can maintain being cool at home?
I was productive however. I vacuumed the house and mopped the kitchen. I unloaded the dishwasher. I watered the plants and trimmed some bushes out front. I walked the dog. I cleaned the toilets and did two loads of laundry and tidied up a little bit around the house.
I did such a fine job I decied to take a break...again...playing a video game.
The phone rang. Caller ID identified the caller as my mother. I didn't answer. I had already spoke to her on Friday on two seperate occassions that she initiated to talk about my skin condition and I couldn't think for the life of me what more could be said or added that hadn't been discussed 100 times before.
That was sort of a mistake not to take the call and just resign myself to the fact that my mother is on one of her 'missions' and will not give up until she feels she completed her self appointed duty. In this case, getting a hold of me.
Now let me preface the next set of paragraphs with a little background on my mother and me and our dynamic. I am an only child...meaning I have no brothers or sisters to share either the ire or love of my parents. My mother is 100% Italian and has an alpha personality. I do indeed love my mother very, very much. I cannot stress how much I do love her, but, she does have the uncanny ability to drive me crazy, run things into the ground, never let go of ancient history, and generally get involved in things when not asked to because she wants and feel the need to help.
In the past I have asked my mother very politely to back off of certain things, especially when it comes to my marriage and personal life. Sometimes I find myself repeatedly asking her to back off. Sometimes my politeness has a limit...and after we go round and round on a topic for the tenth time, I begin to lose my patience and my politeness.
You also have to understand my mother really has the the best of intentions. I know deep down she means no harm and just wants to help, but she can be the 'nosy neighbor' or the person who just finds themselves in the middle of everything no matter how hard you try and avoid it. To put it simply, my mother has control issues, and I often wonder how much of a contributing factor she is/was in my depression. I say that because as much as I love my mother, I cringe when the phone rings anymore. It's always 'something'. It's usually a laundry list of whats wrong with everybody else, or some wacky advice with no real basis in fact. And probably the biggest issue I have with my mother to date: it takes her forever to get to the point on anything due to the round-about way she discussed things.
You're probably thinking about the same thing right now in regards to me. Well, maybe that is true on occassion. But I really think this is the biggest diffrence between the two of us: I am very detailed orientated and can take you from point A to point Z in a very methodical, effiecient, and planned out manner. My mother can also take you to point Z if you don't mind traveling back to previous points multiple times.
Me: A-B-C-D-E-F......X-Y-Z.
My mother: A-A-B-C-A-D-E-A-B....
You get the point. It's maddening, frustrating, repetitive, eye-rolling, and pateince testing. There are times I catch myself saying "Yeah, yeah..Got it..Okay..Move on....Your point is?" And for some reason, no matter how much I pray to God to grant me patience....it is something I really don't have yet.
So when I don't pick up our house phone...then my cell phone rings just afterwards. Typical M.O. This will continue every half hour until I call back or pick up. The longer I wait, the more intense the conversation will become and then I have to answer additional questions like "Where were you? Why didn't you pick up? I've been trying to call all day."
Yeah, I know.....that's why I don't pick up....I have nothing to say at times and I don't want to get sucked into a 20 minute conversation about who knows what. I relish in peace and quiet at times and enjoy my days off in solitude. 90% of the time the conversations she initiates have no real depth to them or point. I figure its just her way at 64 years of age to keep tabs on me or to interject herself yet again, for her own self-validation. Oh man, I know that sounds so harsh and mean spirited and I cringe internally when I even think it, but that's how I feel.
Needless to say, I avoid the calls as long as I can and decide to suck it up, sit down, and return the call at 3pm.
To be continued.....
Her problem, and I tried to warn her multiple times of this a few years back, is that she has a problem saying "No." to her company when they ask her to do favors. Funny, she doesn't have a problem saying "No." to me when I think about it. She's sorta backed herself into a corner these days in the fact that her boss doesn't even ask for 'favors' anylonger. My wife has said "Yes." so many times in the past, they now just expect her to work when everyone else takes time off for personal reasons. If there is one thing outside our marital and financial issues that irks me is that I really do feel they have her over a barrel and truly take advanatge of the situation. The last few months her work has been piling up and on, and her 40 hour a week job has easily been closer to 60 as of late. The problem is, they really do not compensate her for it...not even 'comp' time. I know the state of the economy we're in, and with some of our bills, we can't afford (for very long) to have one of us lose our job right now. She just got her merit raise and it was a whole 3%. I suppose 3% is better than nothing (my company didn't give any raises so far this year), but 3% of nothing really doesn't equate to much anyhow. It clearly doesn't even come close to the amount of hours she's been working, and for that I do feel bad for her. On the flip side.....the more she works though, I figure the less likely she's apt to get in trouble and also stays away from what I consider some bad outside influences.
Anyway, she got up early on Saturday morning to go to work and since I've been having trouble sleeping anyways, I decided to get up as well. It was early enough where I figured I could do some chores before I went to my mens bible study at 8:30am. At about 7:15 I decided to take a few minutes break and play a video game for a few minutes.
That's the danger of addictive games....my planned 30 minute break started to creep up on 45 minutes and I kept telling myself "5 more minutes" and I gotta go. Well, I must have said that to myself at least 3 times because the next time I looked at the clock it was now 8:25 and I wasn't even dressed. Thankfully, my church os only 2 minutes away, so I figure they never start on time anyway, so if I'm 5 minutes late, I really haven't missed anything.
Well, wouldn't you know...I stretched my 5 extra minutes into an additional 10. When I finally turned off my computer and got dressed it was now 8:45. I told myself I should start a load of laundry (it should be done by the time I get back)....after I take my medication. I loaded the machine with my work clothes, took my meds and then looked at the clock. 9:00am. Great. Now I'm 30 minutes late.
I look at my dog and realize he hadn't been walked in two days due to the heat and I felt a bit guilty. I made the decision to walk my dog and forego bible study. By the time I got there at this rate it'd be 1/2 over anyway.
Ugh. Inside I felt ashamed. I had all intentions of going the previous few days and thought I was looking forward to attending. But deep down inside, I must have made some internal excuses as to how to avoid it....and then justify it within my mind. My last self-justification was that my body was still recovering from my latest Uticaria outbreak, with my hives about 90% under control. Why chance the heat if I can maintain being cool at home?
I was productive however. I vacuumed the house and mopped the kitchen. I unloaded the dishwasher. I watered the plants and trimmed some bushes out front. I walked the dog. I cleaned the toilets and did two loads of laundry and tidied up a little bit around the house.
I did such a fine job I decied to take a break...again...playing a video game.
The phone rang. Caller ID identified the caller as my mother. I didn't answer. I had already spoke to her on Friday on two seperate occassions that she initiated to talk about my skin condition and I couldn't think for the life of me what more could be said or added that hadn't been discussed 100 times before.
That was sort of a mistake not to take the call and just resign myself to the fact that my mother is on one of her 'missions' and will not give up until she feels she completed her self appointed duty. In this case, getting a hold of me.
Now let me preface the next set of paragraphs with a little background on my mother and me and our dynamic. I am an only child...meaning I have no brothers or sisters to share either the ire or love of my parents. My mother is 100% Italian and has an alpha personality. I do indeed love my mother very, very much. I cannot stress how much I do love her, but, she does have the uncanny ability to drive me crazy, run things into the ground, never let go of ancient history, and generally get involved in things when not asked to because she wants and feel the need to help.
In the past I have asked my mother very politely to back off of certain things, especially when it comes to my marriage and personal life. Sometimes I find myself repeatedly asking her to back off. Sometimes my politeness has a limit...and after we go round and round on a topic for the tenth time, I begin to lose my patience and my politeness.
You also have to understand my mother really has the the best of intentions. I know deep down she means no harm and just wants to help, but she can be the 'nosy neighbor' or the person who just finds themselves in the middle of everything no matter how hard you try and avoid it. To put it simply, my mother has control issues, and I often wonder how much of a contributing factor she is/was in my depression. I say that because as much as I love my mother, I cringe when the phone rings anymore. It's always 'something'. It's usually a laundry list of whats wrong with everybody else, or some wacky advice with no real basis in fact. And probably the biggest issue I have with my mother to date: it takes her forever to get to the point on anything due to the round-about way she discussed things.
You're probably thinking about the same thing right now in regards to me. Well, maybe that is true on occassion. But I really think this is the biggest diffrence between the two of us: I am very detailed orientated and can take you from point A to point Z in a very methodical, effiecient, and planned out manner. My mother can also take you to point Z if you don't mind traveling back to previous points multiple times.
Me: A-B-C-D-E-F......X-Y-Z.
My mother: A-A-B-C-A-D-E-A-B....
You get the point. It's maddening, frustrating, repetitive, eye-rolling, and pateince testing. There are times I catch myself saying "Yeah, yeah..Got it..Okay..Move on....Your point is?" And for some reason, no matter how much I pray to God to grant me patience....it is something I really don't have yet.
So when I don't pick up our house phone...then my cell phone rings just afterwards. Typical M.O. This will continue every half hour until I call back or pick up. The longer I wait, the more intense the conversation will become and then I have to answer additional questions like "Where were you? Why didn't you pick up? I've been trying to call all day."
Yeah, I know.....that's why I don't pick up....I have nothing to say at times and I don't want to get sucked into a 20 minute conversation about who knows what. I relish in peace and quiet at times and enjoy my days off in solitude. 90% of the time the conversations she initiates have no real depth to them or point. I figure its just her way at 64 years of age to keep tabs on me or to interject herself yet again, for her own self-validation. Oh man, I know that sounds so harsh and mean spirited and I cringe internally when I even think it, but that's how I feel.
Needless to say, I avoid the calls as long as I can and decide to suck it up, sit down, and return the call at 3pm.
To be continued.....
June 30, 2008
A Series of Events (Part I) - Prologue
This past weekend was met with mixed results for yours truly. There were some very happy moments, and there were also a few unpleasant ones as well.
Sunday specifically led the charge of both extreme personal highs and emotional lows in which I am still trying to digest and wrap my brain around in conjunctuion with Christ's words on peace, grace, and calming my inner spirit.
Let me first start by saying that after almost two weeks of various allergy medications that have messed with me in more ways than one, my rash or 'hives' finally seem to be under control. I'm not sure if I ever mentioned it here before, but back in 2006 I developed a very serious skin rash. Something I never had never experienced before and it scared me as well as being very miserable on both a physical and emotional level.
We were on vacation when my body began to swell up. My skin developed 'hives' of such an intense nature my skin felt as if it were on fire....literally radiating heat to the touch and causing extreme discomfort with the persistant 'itchiness' of it all. Since we were on vacation at the time, my local doctor was nowhere to be had. I ended up going to an emergency room in a far off city to have injections of ephedrine and cortisone and placed on a knee-jerk perscription of anti-inflammatories, anti-histimines, and anti-itch meds. They had a very limited effect at the time and I suffered for the next few days until I could return home and see my regular doctor, who in turn recommended me to a dermatologist.
The dermatologist took two skin biopsies from my leg and blood samples and sent them off for testing. While my hives did not get any worse, I was not really improving either. And to be quite honest, I sorta looked like a walking freakshow. You wouldn't believe the stares I was getting, and the swelling did temproarily disfigure my face. My forehead and bridge of my nose was so bad, it looked as if my eyes shifted an additional inch away from each other.
My blood work came back as did the biopsy reports a few days later, and both can back negative. I suppose that's the good news....no wierd tropical disease or cancer or virus. However, the bad news was that no one had an explanation as to what brought it on or even had a guess to what I may have had. I have never in my life had that before and we all sat around scratching our heads as to what may have been the trigger.
That was May of 2006. It is now June 2008 and I can tell you I have had the incident repeat itself a total of 5-6 additional times. I have since seen an allergist and have had my blood tested again and a full work up of allergy tests (skin scrapes). My blood still tests negative (normal), and allergy tests have only confirmed what I already knew....a few certain foods, some grasses, weeds, molds, etc. that most people are allergic to anyway and didn't seem to be a trigger for it.
Fortunately it has never been as bad as the initial time and I have learned how to detect the onset (feelings) at its earliest stages so I can attempt a premeditated strike of medications. I can't stop it, but I have learned how to lessen its impact and try to become as comfortable as I can under the circumstances.
The various doctors I have been seeing 'think' they may now know what I have: Chronic Uticaria. I say 'think' because they are not 100% positive, bit nothing else fits the symptoms right now. The bad news is there really is no effective cure, nor does science know exactly what causes it. So it appears that I developed a condition out of nowhere in May 2006 and will be subject to it the remainder of my natural life...with tons of pills in plastic containers ready to take at a moments notice. God forbid I get another illness and have to combine even more drugs.
The symptoms today: swollen hands and some facial swelling, itchiness of the scalp and hands, some discomfort in normal breathing, and probably the most visible cue - red 'splotches' on my head, neck, arms, thighs, sides of body and can include my hands and feet, and at times, radiate heat.
Here are a few things I have to do: stay cool and out of direct sun for long periods of time. No extreme physical exertion (no gym, no intense labor, avoid projects that I have to use my hands alot), watch my stress levels and blood pressure, try an avoid scratching as best I can when I itch. Take cool showers. Take anti-histamines. Take anti-inflamatories. Take steroids.
So you're probably wondering why I am going into all this detail now. Well, I suppose I'm just giving you some background information on me to help set up my next few posts about this weekend.
To be continued....
Sunday specifically led the charge of both extreme personal highs and emotional lows in which I am still trying to digest and wrap my brain around in conjunctuion with Christ's words on peace, grace, and calming my inner spirit.
Let me first start by saying that after almost two weeks of various allergy medications that have messed with me in more ways than one, my rash or 'hives' finally seem to be under control. I'm not sure if I ever mentioned it here before, but back in 2006 I developed a very serious skin rash. Something I never had never experienced before and it scared me as well as being very miserable on both a physical and emotional level.
We were on vacation when my body began to swell up. My skin developed 'hives' of such an intense nature my skin felt as if it were on fire....literally radiating heat to the touch and causing extreme discomfort with the persistant 'itchiness' of it all. Since we were on vacation at the time, my local doctor was nowhere to be had. I ended up going to an emergency room in a far off city to have injections of ephedrine and cortisone and placed on a knee-jerk perscription of anti-inflammatories, anti-histimines, and anti-itch meds. They had a very limited effect at the time and I suffered for the next few days until I could return home and see my regular doctor, who in turn recommended me to a dermatologist.
The dermatologist took two skin biopsies from my leg and blood samples and sent them off for testing. While my hives did not get any worse, I was not really improving either. And to be quite honest, I sorta looked like a walking freakshow. You wouldn't believe the stares I was getting, and the swelling did temproarily disfigure my face. My forehead and bridge of my nose was so bad, it looked as if my eyes shifted an additional inch away from each other.
My blood work came back as did the biopsy reports a few days later, and both can back negative. I suppose that's the good news....no wierd tropical disease or cancer or virus. However, the bad news was that no one had an explanation as to what brought it on or even had a guess to what I may have had. I have never in my life had that before and we all sat around scratching our heads as to what may have been the trigger.
That was May of 2006. It is now June 2008 and I can tell you I have had the incident repeat itself a total of 5-6 additional times. I have since seen an allergist and have had my blood tested again and a full work up of allergy tests (skin scrapes). My blood still tests negative (normal), and allergy tests have only confirmed what I already knew....a few certain foods, some grasses, weeds, molds, etc. that most people are allergic to anyway and didn't seem to be a trigger for it.
Fortunately it has never been as bad as the initial time and I have learned how to detect the onset (feelings) at its earliest stages so I can attempt a premeditated strike of medications. I can't stop it, but I have learned how to lessen its impact and try to become as comfortable as I can under the circumstances.
The various doctors I have been seeing 'think' they may now know what I have: Chronic Uticaria. I say 'think' because they are not 100% positive, bit nothing else fits the symptoms right now. The bad news is there really is no effective cure, nor does science know exactly what causes it. So it appears that I developed a condition out of nowhere in May 2006 and will be subject to it the remainder of my natural life...with tons of pills in plastic containers ready to take at a moments notice. God forbid I get another illness and have to combine even more drugs.
The symptoms today: swollen hands and some facial swelling, itchiness of the scalp and hands, some discomfort in normal breathing, and probably the most visible cue - red 'splotches' on my head, neck, arms, thighs, sides of body and can include my hands and feet, and at times, radiate heat.
Here are a few things I have to do: stay cool and out of direct sun for long periods of time. No extreme physical exertion (no gym, no intense labor, avoid projects that I have to use my hands alot), watch my stress levels and blood pressure, try an avoid scratching as best I can when I itch. Take cool showers. Take anti-histamines. Take anti-inflamatories. Take steroids.
So you're probably wondering why I am going into all this detail now. Well, I suppose I'm just giving you some background information on me to help set up my next few posts about this weekend.
To be continued....
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